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Today two things happened which will drive some changes in my schedule.
First, the results of the CT scan scheduled for Friday will NOT be given to me on Friday, as the doctor had originally said. According to his nurse, he will not be able to see or hear any report for at least 5 days, and then it will be another 5 days until it is in the system.
Soooo, no head-shaving party on Sunday, 11/13.
In addition, Dr. Russin has ordered another scan, a cardiac scan, which will be done this Friday 11/11, at 11 am. That's got some holiday significance I think. Whatever.
I picked up a load of stuff at the pharmacy, including very expensive pills to take for nausea, but they were never able to locate the syringes my doctor ordered so I could inject myself between infusions. So after 2 trips to the pharmacy and a total of 40 minutes waiting I don't have all my stuff.
The whole day has been like that, late and screwed up and all that, but there were two things that got my attention:
The receptionist in the Nuclear Medicine Dept. is Eva, and she is an absolute delight. She speaks with a clear accent, but when I couldn't place it I asked, and she told me she came to the US from Poland 5 years ago with not one word of English. She's so kind and helpful, and so generally adorable, I just had to mention her. I'm sure her upbeat attitude makes it much easier for sick patients to deal with all the testing.
And then there was a screamer. Poor thing, 14 years old and completely unglued at the prospect of an injection, they actually had to restrain her to do it, and she was screaming bloody murder the whole time, in a room behind where I was sitting getting MY injection. I was struck by how her mother, who seemed like a nice person, did not comfort her at all while she was hysterical. The mother kept saying 'just pull yourself together,' and 'do you want your friends to know you did this?' It took all my self control not to offer a hug or be a butt-in-ski.
I wonder how Dr. Russin expects chemo to begin next week if we don't know what we're dealing with. I feel overwhelmed because my life is completely out of my control, and I can't make any plans at all, not even from day to day.
On the other hand, today I bought word stones with 'faith' and 'friends,' plus a new pouch, a hug, a kiss and a heart. And a chain to wear around my neck to hold the pouch at just the right position for me to be able to manipulate it easily.
The volunteer list is in process. No hurry at this point. Keep praying.
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